Special Education Law Blog

The Transformative Effects of Special Education Advocacy by Pam A. Labellarte

 

Over the years I have worked with lots of moms; supporting, training and building good advocacy for their child with special needs. The remarkable thing to see is once the advocacy skills take hold, are the transformative effect it has on the Mom at the IEP meeting and in other areas of her life. Becoming an effective advocate taps into that basic parental instinct to preserve and promote your child’s best interest. (I speak about Moms, but there have also been some Dads too!)

Putting Real “Life” Into Life Skills by Pam A. Labellarte

As parents one of our key roles is that of preparing our children to have the tools to  become successful adults. Since our children each have a different set of gifts and challenges, the preparation for each of them can vary greatly.  And the definition of a successful life can vary even more.

So I began searching for answers to the question, “Where did the concept of teaching life skills to children with disabilities originate?” “Who defined which “life skills” are critical to promote “independent living” for adults with disabilities?” Don’t get me wrong, I am the parent of three children, the youngest, a daughter with Down syndrome. I truly believe that the development of certain life skills is critical, in order for adults with disabilities to participate in the community and life.  In fact, I wish all high school students would receive more intense instruction in budgeting, understanding basic expenses (like car insurance) balancing their checkbook, and developing the skills to be productive employees.

 

The premise of the IEP is to address the individual needs of the student, yet many students with disabilities are expected to master skills, which may not even be considered a priority by their peers who do not have a disability. In her article “Life Skills Don’t Bring Happiness” Colleen F. Tomko [see Download LifeSkills] addresses this topic with wit and wisdom.  It would do us all well to consider where we place our energies as we prepare our children with disabilities for adulthood.

Common Psychiatric Drugs Linked to Weight Gain and Possible Elevated Cardiac Risks

Some of the most common psychiatric drugs, Abilify, Risperdal, Seroquel and Zyprexa, have been linked with significant weight gain in children. These drugs have also been linked with elevated levels of cholesterol, triglycerides and diabetes and possible long term cardiac risk.  Schools often pressure parents to have students begin taking these powerful drugs. Legally under IDEIA schools should not be having this conversation. Practically, this conversation should only take place between the family and their physician. These medications can be an important part in addressing the symptoms of disability, but decisions about their use must weigh the significant short term and long term risks.

New Federal Hate Crimes Law Includes Disability

The Federal Hate Crimes Bill has been revised and signed into law. Among important changes to the law is that crimes that are related to a person's disability can be considered hate crimes.  It will be interested to see if this new law will act as deterrent to repeated acts of bullying, harassment and violence directed at individuals with disabilities. Given the the recent round of staff on student violence that has been reported in the press, this law is very timely.

Support COPAA's Work Protecting Rights of Students with Disabilities

I do not usually use the blog to encourage contributions to an organization but COPAA (described below) is the bulwark that is protecting students' rights on a national and local level. Please read the following and consider donating and joining COPAA as it is open to parents, advocates and attorneys.

Moving Children Around A Failure in Chicago

Arne Duncan's, former head of Chicago Public Schools and now U.S. Secretary of Education, strategy in Chicago was to move children out of underperforming schools to other schools.  The only problem is that the "other schools" were also underperfoming. No surprise that this variant on NCLB of moving children around  has not been effective for students. It did however make for good press allowing Mr. Duncan to become Secretary of Education Duncan.

I am a President Obama supporter on most issues, but picking Arne Duncan was not a smart move. Chicago's schools are and have been systematically broken and lot of that responsibility lies with Mr. Duncan's lack of effective leadership (see e.g. Download AccessLiving_Ren_2010) [Click for background information on Renaissance 2010 a Duncan lead proposal]. Now we are getting the same on the national level:

"A Chicago-style strategy is a feature of U.S. Secretary of Education Arne Duncan’s push for the nation to turn around its lowest-performing schools. Mr. Duncan was the chief executive officer of the Chicago public schools from 2001 until December 2008, when President Barack Obama nominated him as education secretary. School closings are one element of the so-called “turnaround” plans Mr. Duncan has promoted as secretary, which also include measures that would replace principals and teachers in persistently failing schools."

I have very low expectations of anything effective coming from Mr. Duncan's leadership on a national level. We need to move him out and someone with real ability into this role.

Hard Economic Times Creating More Physical Barriers

When you are in a wheelchair (which I experience vicariously through my son everyday) a cracked sidewalk is a major obstacle. On more than one occasion, especially in urban areas, we have been forced into the street to make our way to doctor's appointments, restaurants any other places in the community. Lack of funds for maintenance, especially in hard economic times, has created enormous access issues on public sidewalks. Well I am happy to report that in Texas and other places around the country, people with disabilities are filing ADA lawsuits for safe and barrier-free access to public sidewalks.  The stakes are high but you should not have to risk your life just to access the community.

Sign Language Used In Good Classroom Management

IDEIA requires schools to implement Universal Design in the classroom. Nevertheless, Universal Design is not well defined or widely implemented. CAST, a not-for-profit organization that is dedicated to promoting Universal Design for Learning ["UDL"] defines it as "[e]mbedded features that help those with disabilities eventually benefit everyone. UDL uses technology's power and flexibility to make education more inclusive and effective for all." Some obvious examples are curb cuts (usable for baby strollers and wheelchairs) and closed captioning which can support literacy and those with hearing impairments.

In some schools around the Washington D.C. area teachers are using signed letters and words to better manage their classes. Students flash a signed letter to the teacher such as "B" for bathroom or "L" for library and the teacher responds with a sign or other gesture, which allows him or her to go on with the lesson without interruption.

Perhaps without even realizing it, these teachers are using UDL for more effective classroom management. Special education methods when used creatively in the classroom can benefit all students and the teacher. Similarly, I have effectively advocated for a visual behavior system that was aimed at a student with autism, also proved highly effective for the entire the class without stigmatizing the "target student." It is nice to see a school that views all students as part of one common community of learners, where methods from special education seamlessly cross-over to the entire class. It might even be fun to see teachers flashing signs like a third base coach down the road, so long as they do not flash the universal sign to throw a student out of the class (game).

Hallowhining By Lori Miller Fox

As some of you might remember, I have always found Halloween to be a particularly difficult holiday. Whether it’s having neurotypical kids ring my bell, or just seeing groups of neurotypical peers in the distance,   it’s enough to make me cry or padlock my door.  Either way I’m left to deal with it the best I can; with humor to distract me, or eating candy to numb the pain. Hope this funsize bit of humor does the trick for you.

Student With Autism Saves Teacher

Here is the antidote to the depressing news of students with special needs either being killed or killing staff posted earlier. A student with autism who was a Cub Scout saved his teacher from choking.